My mum has been diagnosed with terminal cancer, and the natural instinct is to focus entirely on her care and comfort, which is right. But there is a parallel, practical job that has to happen alongside it, and it goes better if it starts this week rather than being left until a crisis forces it. This is deliberately not a piece about coping or emotional support; it is a checklist of four documents worth locating now, where each is usually kept, and who to telephone once you have found it.
The four are: any life insurance or over-50s plan, and whether it sits in trust; every pension she holds and its expression of wish form; a lasting power of attorney, made while she still has capacity; and her will. Between them, those four documents decide who can act on her behalf, who receives money, and how quickly it reaches them. Everything else can wait a little longer.
At a glance
- Four documents matter most: life insurance or an over-50s plan, pension nominations, a lasting power of attorney, and the will.
- A lasting power of attorney can only be made while she has the mental capacity to understand it; it cannot be arranged after that is lost.
- Bank statements are the fastest way to find policies nobody remembers, because premiums show up as regular payments to an insurer.
- A policy written in trust pays quickly and bypasses probate; one that is not can leave the family waiting months for money that exists but is not yet accessible.
- None of this requires urgency in the sense of panic, but it does require starting now, while she can still answer questions herself.
What paperwork matters most when a parent is dying
It helps to be blunt about priorities, because a checklist when a parent is terminally ill UK families can actually use should not try to cover everything at once. Start with anything that has a deadline attached, directly or indirectly: a lasting power of attorney, because capacity can decline and the window to make one closes without warning; life insurance and pension paperwork, because knowing what exists and where it is written changes what the family can access and when; and the will, because it tells you who she has appointed to deal with the estate and what she actually wants to happen.
Everything else, from sorting old photographs to cancelling subscriptions, can be dealt with later by whoever is appointed to handle it. Concentrating on these four now avoids a much harder scramble in the following weeks, when grief makes the same administrative tasks considerably more difficult to face.
Document one: life insurance and over-50s plans
Look for any life insurance policy, whole-of-life plan, or over-50s guaranteed-acceptance plan, and for each one establish two things: what the sum assured is, and whether the policy is written in trust. That second question matters more than the first. A policy in trust pays the trustees named in the deed directly, without waiting for probate, so the money can reach the family within a short time of a claim being accepted. A policy that is not in trust normally pays into the estate, which usually means waiting for probate before anyone can use it, sometimes for months. If it turns out a policy is not in trust and there is time to fix that now, ask the insurer how, since it can make a substantial difference to how quickly money is actually usable later; the general mechanics of that timing gap are set out in how trust status changes when a policy pays out relative to probate.
Policy documents are often kept with other important papers in a household file, in a folder with the mortgage paperwork, or with a solicitor or financial adviser who arranged them originally. If nothing turns up but you suspect cover exists, bank statements are the quickest route: a regular monthly payment to a named insurer is usually a premium, and the insurer's customer service line can confirm what policy it relates to once you explain the situation. If she is well enough to be asked directly, a short, calm conversation is faster than any amount of searching.
Document two: every pension and its nomination form
Workplace and personal pensions each hold an expression of wish, or nomination, form that guides the scheme's trustees on who should receive any lump sum death benefit. This is separate from the will; pension trustees usually have discretion over who receives the money, and a will cannot override an existing nomination, though an out-of-date or missing form leaves the outcome uncertain and can result in money reaching someone she would not have chosen.
List every pension she has ever paid into, including old workplace schemes from jobs held decades ago, since these are the ones people forget entirely. For each, find out whether a current nomination is on file and, if it names an ex-partner, a parent, or nobody at all, ask the scheme how to update it while she still can. If some pensions cannot be traced, the government's pension tracing service can help identify old providers, and how an executor traces pensions that have gone quiet covers the same search process, which applies just as well before death as after it.
If she is receiving a terminal illness benefit under an existing life policy or considering claiming one, the practical steps for that separate process are covered in how to claim terminal illness benefit, since claiming early changes how the money is treated compared with leaving the policy to pay out on death.
Document three: the lasting power of attorney
A lasting power of attorney lets her choose, now, who can make decisions about her property and finances, or her health and welfare, if she later becomes unable to make them herself. This is the most time-sensitive document on the list, because it can only be made and signed while she has the mental capacity to understand what she is agreeing to. Once that capacity is lost, nobody, however close to her, can create one on her behalf; the only remaining route is an application to the Court of Protection for a deputyship, which is slower, more expensive, and gives less choice over who is appointed.
Registration with the Office of the Public Guardian currently takes several weeks once the forms are submitted, so this genuinely is not a task to leave until it feels urgent. If she has capacity now, even if it is expected to decline, arranging this promptly is one of the most useful things the family can do this week. A solicitor can prepare the documents quickly, and some will visit a hospital or home if travel is difficult; the same urgency applies to reviewing or making a will alongside it, covered in making or changing a will on a short prognosis.
Document four: the will
Find out whether she has a will, and if so, where the original is kept, since a copy is not usually sufficient to apply for probate. Wills are commonly held by the solicitor who drafted them, in a bank's safe custody service, or at home with other important papers. If a solicitor holds it, they can usually be contacted now to confirm it exists and to flag that it may need to be reviewed, particularly if circumstances have changed since it was written, for example through a new relationship, additional grandchildren, or assets that have grown or changed since it was signed.
If there is no will at all, and she is able to give instructions, arranging one now removes a significant source of delay and uncertainty for the family afterwards, since without a will her estate would be distributed under the fixed intestacy rules rather than according to her actual wishes. It also lets her appoint executors of her own choosing, name any guardians needed for younger family members, and record a letter of wishes alongside pension and trust arrangements; what a letter of wishes can add to formal guardian appointments explains how that works for anyone with dependent children still involved.
Note too that a copy will is rarely enough to progress an estate later: applying for probate normally requires the original document, so if the solicitor's office holding it has since closed, merged, or moved, it is worth chasing down where the file went now rather than discovering the gap when it actually matters. A quick call confirming the firm still exists and still holds the original saves a genuinely awkward search later, at a time when nobody wants to be tracking down a firm that no longer trades under the same name.
How to find things without causing distress
Approaching all of this sensitively matters as much as approaching it thoroughly. Where possible, ask her directly rather than searching through her belongings without her knowledge, since most people would rather be involved in decisions about their own paperwork, even when they are unwell. Frame it as making sure her wishes are followed properly, rather than as preparing for the worst, which is usually easier for everyone to sit with.
Where a direct conversation is not possible, bank statements remain the single most efficient starting point, since they reveal regular payments to insurers, pension providers, and solicitors that might otherwise go unnoticed. A household file, a bureau drawer, or a folder kept with mortgage paperwork is the next most likely place, and it is worth checking with any solicitor, accountant, or financial adviser she has used previously, since professional advisers often hold copies or at least records of what was arranged and when.
It also helps to keep a simple written record as you go, even something as basic as a single page listing each document, whether it has been found, where it is kept, and who was contacted about it. This sounds unnecessary at the start, but a week or two into the process it becomes the only reliable way to remember which insurer has already been telephoned, which pension scheme is still waiting on a reply, and which papers are still genuinely missing rather than simply not yet located. Whoever ends up acting as executor later will need exactly this information, so building it now saves duplicating the work under more pressure afterwards.
Scotland and Northern Ireland
The lasting power of attorney described above applies in England and Wales; Scotland uses a broadly equivalent power of attorney registered with the Office of the Public Guardian (Scotland), and Northern Ireland has its own enduring power of attorney and lasting power of attorney arrangements administered separately. The core point is identical across all three: the document must be made while capacity exists, and the earlier it is arranged, the more choice there is over who is appointed. Wills are proved through confirmation in Scotland rather than probate, a difference covered more fully in how confirmation in Scotland differs from probate, though the underlying advice to locate and check the will now is exactly the same wherever the family is based.
If cover needs arranging or reviewing as part of this process, whether for her or for other family members thinking ahead after a difficult diagnosis in the family, you can get life insurance quotes from an FCA-authorised broker and ask specifically about writing any new policy in trust, which avoids several of the delays described above from arising again.
Frequently asked questions
What paperwork matters most right now?
Any life insurance or over-50s plan, and whether it is in trust; every pension and its expression of wish form; a lasting power of attorney, which must be made while she has capacity; and the will. Those four decide who can act and who receives what, and each has its own reason to be dealt with promptly rather than later.
Can I set up a power of attorney for my mother now?
Only she can make one, and only while she has the capacity to understand it. Registration with the Office of the Public Guardian takes several weeks, so it is not a last-minute task. Once capacity is lost, the alternative is a Court of Protection deputyship, which takes longer and offers less choice.
Where do people usually keep these documents?
With bank statements or in a household file, with the solicitor who made the will, or with the broker who arranged a mortgage or policy. Bank statements are the fastest route to policies nobody remembers, because premiums appear as regular monthly payments to an insurance company.